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Thanks for your interest in Maggie's Cure. I'll add updates to our journey on this site!

8-Month Update

I had the great honor to present on the PMM2-CDG Collaboration Call on October 8th, 2020. You can watch a recording of the presentation...

August 26th, 2020 n=1 Epalrestat Trial for the treatment of PMM2-CDG 6-month Update Disclaimer: I’m mom to Maggie, age 6, PMM2-CDG. This...

June 14th, 2020 Maggie Update – Single Patient IND – Epalrestat for the treatment of PMM2-CDG Disclaimer: I’m mom to Maggie, age 6,...

February 25th, 2020 Got to see Maggie’s favorite doctor today Eva Morava...always such a happy time! We checked in for Day 30 of the...

January 29, 2020 Disclaimer: This post is from me, a mom of a child with PMM2-CDG. This should in no way be construed as medical advice...